© 2015 Nevus Support Australia PO Box 262, Seacliff Park, South Australia 5049  
March   17th   2001   is   a   day   that   will   long   be   remembered   as   a   day   that   changed   the   Wood   family   forever   for   a   number   of   reasons.   It   was   a   day   in   past years that we celebrated St Patrick's day but in 2001 it was the day that our precious first child Meg, was born.   Meg   arrived   2   and   a   half   weeks   early   on   a   Saturday   morning.   She   was   born   at   the   aptly   named   Sunshine   Hospital   after   7   hours   of   uncomplicated labour. Although   we   had   gone   24   hours   without   sleep   the   whole   experience   is   still   very   vivid.   I   remember   Meg   "arriving"   and   the   mid-wife   saying   that   it was a beautiful girl , Meg was then put on Tracey's tummy. Soon after I cut the cord and while deliriously tired, I felt overwhelmed with emotion. We   were   not   aware   of   anything   other   than   we   had   a   beautiful   baby   daughter,   it   was   only   when   I   went   with   the   nurses   to   clean   Meg   up   in   another   room that   I   noticed   she   had   50+   "birthmarks"   on   her   backside.   I   was   the   first   person   to   notice   it,   as   up   until   then   no   one   had   focused   on   her   back.   I   alerted   the nurse and she said she had not really seen anything like it before and would get the paediatrician to look at Meg. I   went   and   told   Tracey   about   the   marks   and   that   I   didn't   know   exactly   what   it   was   and   that   the   doctor   would   have   a   look.   I   have   a   sister   that   has   a birthmark   the   size   of   a   squash   ball   on   her   face   and   thought   that   maybe   it   was   similar,   but   the   sheer   amount   that   Meg   had   and   the   area   it   covered   was very concerning. After   some   time   the   paediatrician   arrived   and   she   said   that   she   had   not   encountered   the   condition   before   and   said   that   she   would   organise   some   other paediatricians who may have some knowledge about the condition. The lack of knowledge in the initial days after Meg's birth made this time very bittersweet . The   excitement   and   emotion   of   having   a   new   baby   girl   was   being   offset   by   the   fear   of   the   unknown   and   what   affect   this   condition   would   have   on   Meg's future. Our   families   were   fantastic   support   but   were   obviously   worried   as   we   were,   and   probably   don't   and   will   never   fully   understand   how   Tracey   and   I   were feeling during that difficult time.  After   3   days   we   were   visited   by   2   more   paediatricians   who   referred   us   to   a   dermatologist.   So   straight   after   booking   out   of   the   hospital   we   visited   Dr Bruce   Tate.   He   knew   about   the   condition   and   explained   that   NCM   could   be   a   related   side   effect   and   gave   us   some   other   information   and   referred   us   to a   leading   dermatologist   at   the   Royal   Children's   Hospital.   From   there   we   started   searching   on   the   internet   for   more   information   on   what   we   could   and should do. We were finding dribs and drabs of information but nothing that you would describe as definitive.  During   our   journey   we   have   searched   for   information   on   the   internet,   spoken   to   plastic   surgeons,   attended   a   Dermatologists   day   where   30   Doctors   all looked   at   Meg   and   gave   us   a   summary   of   their   findings,   Meg   had   an   MRI   scan,   visited   leading   paediatricians   and   of   course   eventually   stumbled   across the support group which has been a great comfort and wealth of information for us.  Meg   will   be   3   years   old   on   the   17th   March   2004.   Meg   has   developed   a   large   bathing   trunk   nevus   since   she   was   born   and   the   majority   of   her   satellites are   now   within   her   large   nevus.   She   has   developed   other   satellites   on   her   arms   and   legs   but   they   are   very   small   and   don't   seem   to   be   growing   and   are very minor. Aside from cosmetic issues she has no ill effects from the nevus.  She   is   a   very   bright   and   strong   willed   little   girl   who   at   this   stage   is   not   conscious   at   all   of   her   marks   as   displayed   by   her   desire   to   get   around   in   the   nude whenever she can. In   many   ways   we   are   fortunate   that   Meg's   nevus   is   not   in   an   area   that   brings   attention   on   a   daily   basis   and   is   covered   by   her   normal   clothing.   At   this stage we have been advised that there is no real health benefit in removing the nevus and have decided not to seek surgical options. I   am   sure   it   is   quite   confronting   for   people   who   see   Meg   without   her   pants   off   for   the   first   time   but   we   believe   that   we   have   educated   our   family   and close   friends   and   they   know   that   it   is   just   the   way   she   is.   We   believe   that   in   Meg's   situation   and   with   the   improvement   in   technology   that   we   will   give Meg   the   option   of   removal   when   she   is   old   enough   to   make   a   decision.   Tracey   and   I   know   that   there   will   be   some   difficult   times   as   she   gets   older   and more aware of her body but with our love and support we are confident that we can steer Meg in the right direction.   Monitoring   the   condition   will   be   an   on-going   process   and   to   this   stage   the   relevant   experts   are   very   pleased   with   her   progression.   With   support   from family and friends we will continue our journey and do what we can to ensure that Meg has a great life.

Meg’s Story

By Troy Wood (Meg's Dad) published 2004 
ABN: 23543860400
This information on this website is for general information purposes only. It is not intended as a medical reference. Please talk with your doctor for medical advice.