About Nevus Support
Nevus Support Australia Inc. is a registered Not for Profit, tax deductible charity supporting individuals and families affected by Congenital Melanocytic Naevus.
Nevus Support Australia Inc is run entirely by volunteers. No staff member is paid and all profits go to supporting our members. ABN: 23543860400.
In November 2001 our daughter Danielle was born with a birthmark condition called Congenital Melanocytic Naevus.
We thought we were the only ones dealing with this condition. We were afraid and felt very alone, we wanted to know how to help her with this condition. There was no support group available in Australia. What we needed most was to talk to other families who had been in the same position that we now found ourselves.
Not content to give up we continued searching for answers and with the help of an American support group Nevus Outreach and a social worker from the Adelaide Women's and Children's Hospital we eventually made contact with several families in Australia who also had children with this condition. As we spoke to the families we had made contact with it became apparent that everyone had had similar experiences of isolation and a desire to connect with other families.
In 2002 the concept of Nevus Support Australia blossomed and by January 2004 we were holding our first National conference in Adelaide and released our first print brochure about the condition and our group to doctors offices and major hospital all around the country.
What we are doing ....
Today Nevus Support Australia Inc. is a registered Not for Profit, tax deductible charity. We have a membership of over 100 families which is growing weekly and incorporates New Zealand and southern Asia.
We are working collaboratively with support groups and researchers around the world and holding regular bi annual conferences so that our very special families can meet each other and share in their journeys.
We produce regular newsletters and of course run this website. New families are now referred to us by medical professionals or locate us via this website and our hope is that no one ever feels totally alone with this condition again..